A welcoming ‘can do’ group

The West Sussex South Branch offers dedicated support to families living with MND in this area

Covering the area from Emsworth, Chichester, Worthing, Shoreham and the Chanctonbury Villages, Billinghurst, Petworth, Midhurst, Rogate across to the Sussex Hampshire border. For those living slightly north of this area, please visit West Sussex North.

The West Sussex South Branch was launched in 1985 by Len and Peggy Betterton, whose son had died of MND at the age of 31.  Starting with a grant of £100 from the Association’s National Office the branch has gone from strength to strength and now spends over £30,000 each year on care and support for people in this part of West Sussex. Frances Ramsden who was part of the founding team, still serves with our branch.

In 2005, using a generous legacy, the branch funded a 3 year pioneering accessible respiratory support service for people with MND. This is now being funded, managed and enlarged by NHS Trust.

As part of the MND Association ‘family’ of over 90 nation wide branches and groups, West Sussex South has always been keen to play its part nationally. Over the years four of its enthusiastic members have been elected to the Association’s board of trustees.

What exactly do we do?

  • Raise funds to provide specialised equipment not available form other sources

  • Offer grants towards holidays or transport costs which help improve quality of life

  • Raise awareness of MND among the public, politicians, local health and social care providers and professionals

  • Invest in research to find effective treatments and an eventual cure

  • Host a busy events schedule to help fund-raise and holds open meetings regularly

We are totally committed to the Association’s vision of A world free of MND

Come and join us

This thriving branch is run entirely by local volunteers and is always on the lookout for people with new ideas and energy. There are so many different ways to become involved.

Depending on the time you have available and what you are most interested in there will almost certainly be a way for YOU to make a difference for people living with MND.

  • Want to help practically and would you like to train as an Association Visitor?

  • Do you enjoy fundraising and generating support in the community?

  • Would you like to be involved with design, marketing or planning?

  • Would you like to help raise awareness of MND or even lobbying?

  • Would you like to help with or put on an event, however big or small?

  • Maybe you feel more at home making cakes, or serving teas and coffees?

Branch and Support Meetings

We hold regular Branch, Carer and Support meetings at various locations or online which you are welcome to attend – and a great way to find out more about us. Please check the events section for dates of our next meetings.

Branch Meetings

Our Branch meetings are open to anyone. Typically fourth Monday in April (AGM), June, September and November (Christmas Party).

Carers Group

This friendly group for Carers (and partners), lets you meet with others, share knowledge and experiences or ask questions. On the third Wednesday of each month at 7pm via ZOOM. To join the group, contact: [email protected]

Support Group

Open to everyone and meets on the first Monday of the month at 2pm, currently at the Black Rabbit, Arundel. For more details, contact: [email protected]

Helping families make the most out of life

We’re not just here to help families come to terms with the changes happening around them, but offer practical assistance to ensure a better quality of life together.

Always here to listen
Quality of Life Grants