‘What’s that?’ is still a common response when people hear the words Motor Neurone Disease.
We aim to raise awareness of the disease via this website, social media, campaigns and events, newsletters, engaging MPs and local media and by word of mouth.
We want everyone to know about MND and what it means for people and their families so that they will join us in fighting for the best standards of care and for more research.
Awareness raising can involve talking to groups, acting as the voice for MND at meetings, using displays and leaflets, writing to MPs, making the case for service funding with the Primary Care Trust (PCT).
Once people find out about the impact of this devastating disease on families we know they will be keen to support the fight for better care and more research.