MND Association Privacy Policy

Last updated 12/01/2021

The MND Association is committed to protecting your personal information and being transparent about what information we hold, whether you are a donor, volunteer, shopper, campaigner or a person living with or affected by MND that we support.

Developing a better understanding of our supporters through their personal data allows us to fundraise more effectively, which ultimately helps us move towards our vision of a world free from MND. We have made improvements to this policy so that openness is at the core of what we do.

The purpose of this policy is to give you a clear explanation about how the MND Association and its subsidiary and branches and groups use the personal information you provide to us and that we collect, whether online, via phone, email, in letters or in any other correspondence or from third parties.

We ensure that we use your information in accordance with all applicable laws concerning the protection of personal information and the fundraising code of practice.  This policy explains:

  • What information the MND Association may collect about you
  • How we will use that information
  • Whether we disclose your details to anyone else
  • Your choices regarding the information you provide to us

If you have any queries about this privacy policy please contact the Senior Information Risk Owner (SIRO) at Motor Neurone Disease Association, Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton, NN3 6BJ, telephone us on 01604 250505 or email  dataprotection@mndassociation.org.

Photograph and Video Recordings

Please Note: At all branch related events, including branch meetings and conferences (in person or online via video conferencing software) or at fundraising events, there is likely to be photographic or video recording equipment in operation.

These static or moving images may be used for posterity, promotional and marketing purposes, in future publications and presentations and our digital and social media channels, normally within a five-year period from the date of recording.

This could be done on behalf of branch members operating in a professional capacity, or via submission from general public with their own electronic devices, with the ability for these captured images being shared online or in print via the branch media channels.

If you do not wish to appear in any photographs or video recordings, please let a member of the MND Association branch member know at the time of the event or as soon afterwards via contacting recordings@mndawss.org with the date and time details of the said recording, or any link to the online publication, and they will make sure that you are not included in any images or videos, or retracted if already published.

MND Association Cookie Policy